CHAPTER aims to promote a new culture of engagement between the public, patients, clinicians and researchers, based on joint development of consent models and electronic health record (EHR) research to improve patient care and public health.
Central to the CHAPTER vision is the need to transform the relationship between the patient, their health record and its uses for clinical care and translational research.
We are currently working with mumsnet.com, a social network for parents, to co-create a real-time online maternity record that gives pregnant women access to their antenatal results, with sign-posting to reliable sources of information on pregnancy and childbirth.
We have an energetic user group (Patient Innovation Forum) that advises on research and service developments in reproductive health.
We propose a continuous cycle of engagement between patients, the public and clinicians and academics based on joint exploration and analysis of electronic health records, joint design of CHAPTER’s research and dissemination of findings.